Tempe police Sgt. Dan Masters is organizing a fundraiser for a fellow sergeant’s 3-year-old son, who was recently diagnosed with a rare and dangerous enzyme deficiency disease.
Michael ‘Trey’ Lane, the son of Tempe Sgt. Mike Lane, has a rare genetic disorder called Mucopolysaccharidosis VI or Maroteaux Lamy Syndrome or MPS VI. Masters said only 75 people in the U.S. have the condition, and Trey is the only child in Arizona who suffers from it.
Trey’s life expectancy is 11 to 13 years, Masters said, and there is no cure. Trey is receiving a special therapy into his veins to help slow the progression of the disease, but it is expensive and the family could run out of money to pay for it within a year.
Masters has organized a fundraiser for the child and his family to help pay for medical treatments. It will be held 7 p.m. Sept. 12 at Tempe Mission Palms Hotel, 60 E. Fifth St.
The event is $75 per person and includes a silent auction, cocktail hour, raffle, dinner and entertainment. Proceeds from ticket sales, the silent auction and raffle will go toward Trey’s medical trust fund and toward finding a cure for the disease.
To buy tickets, donate a silent auction or raffle item or for sponsorship information e-mail Dan Masters or Robert Pargmann at treystreasurechest2008@yahoo.com.
my prayers are with you